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PROJECT OVERVIEW
Health Studies Australian National Data Asset (HeSANDA) is a program of the Australian Research Data Commons (ARDC) that aims to build the national infrastructure required to support the sharing and reuse of health research data in a way that would bring value to the research community, increase the efficiency of research, and provide benefits for the health of Australia’s population.
HeSANDA will be developed over a 3-year period. The initial focus is on sharing and reusing data from investigator-initiated clinical trials as a proof of concept.
Based on preliminary scoping work, ARDC identified 3 priorities for HeSANDA:
COLLABORATORS
To date, nine nodes (representing 72 research organisations) have been approved to be involved in the development of the HeSANDA initiative by ARDC including the Sydney Node (short for Sydney Health Partners and NHMRC Clinical Trials Centre Node). Other key collaborators from the ANZCTR, the Australian Institute of Health and Welfare, the Australian Clinical Trials Alliance, NHMRC, Cochrane Australia, Research Australia, and the Population Health Research Network are also contributing to this initiative.
FOCUS ON SYDNEY NODE
Current work is focusing on the systems and processes that will enable findability and accessibility of clinical trial study data. The Sydney Node is working on a:
FUNDING
The Sydney Node of the HeSANDA project received investment from the Australian Research Data Commons. The ARDC is funded by the National Collaborative Research Infrastructure Strategy.
CHIEF INVESTIGATORS
The Sydney Node partners are described below:
Organisation |
Partner |
Role in HeSANDA Sydney Node |
NHMRC Clinical Trials Centre, University of Sydney |
Angela Webster, Director of Evidence Integration |
Leader |
Sydney Health Partners |
Don Nutbeam, Executive Director |
Project oversight |
Westmead Applied Research Centre, WSLHD |
Clara Chow, Academic Director |
Data Contributor |
Health and Clinical Analytics, University of Sydney |
Thomas Snelling, Director |
Data Contributor |
Cardiovascular Centre of Excellence, NSLHD |
Gemma Figtree, Chair of Cardiovascular Initiative |
Data Contributor |
Institute for Musculoskeletal Health, University of Sydney |
Chris Maher, Director |
Data Contributor |
Institute of Bone and Joint Research, University of Sydney |
David Hunter, Chair |
Data Contributor |
Westmead Institute for Medical Research, WSLHD |
Philip O’Connell, Director |
Data Contributor |
The Brain and Mind Centre, University of Sydney |
Matthew Kieran, Director |
Data Contributor |
Woolcock Institute for Medical Research, University of Sydney |
Bandana Saini, Affiliate Staff (Woolcock) and Director, Academic Education (USyd) |
Data Contributor |
Clinical Trials Support Office, Office of the Pro-Vice Chancellor (Research), University of Sydney |
Olya Ryjenko, Clinical Trials Data Lead |
Infrastructure operator |
Digital Health CRC |
Tim Shaw, Director |
Infrastructure operator |
Information and Communications Technology (ICT), University of Sydney |
Ryan Sullivan, Product Manager |
Infrastructure operator |
Sydney Local Health District |
Steve Chadban, Director, Renal Medicine |
Data Contributor |
Sydney Local Health District |
Geoff McCaughan, Clinical Director, GE/Liver Services |
Data Contributor |
Sydney Local Health District, ICT |
Mitchell Burger, Director, Strategy, Architecture, Innovation and Research |
Infrastructure operator |
KEY LINKS
CONTACT
For further information please contact the Sydney Node Project Manager, Talia Palacios: talia.palacios@sydney.edu.au